Other Folks Who Know a Lot About Sulfites

One of the biggest problems with this sensitivity is the wealth of confusing, contradictory, untrue and unhelpful MISinformation out there.  It makes me crazy trying to sift through it all and I am not always sure I get it right.  But there are some great people out there who really helped me through the dark days right after I was diagnosed.  Some helped with information, some understood my frustration, some told me of their path and all of them helped me not to despair. (Unless sense of doom was lending a helping hand!) Check out these sites:

http://www.learningtarget.com/nosulfites/index.htm

http://groups.yahoo.com/group/sulfitesnomore/

http://www.allergysulfiteinwater.com/sulfitebybrands.html

http://www.sulphite.ca/index.html

20 Responses to Other Folks Who Know a Lot About Sulfites

  1. beastie says:

    on holiday at moment, now ready for home, so difficult in Spain sugar is not defined when in cafes on All inclusive did bring some items with me but so miss eating all foods i would have eaten before this terrible intolerance. Maybe have to stay at home ans cancel forthcoming Greek holiday

    • Tracy says:

      Oh, beastie, that is rough. I can barely travel these days myself – it is so hard to keep it safe when you don’t know what the foods might or might not have. I do bring food with me as well, but that only gets you so far – and it is awful to have to watch everyone else eating all the good stuff you can’t have. I feel for you. I have been doing road trip vacations where I can bring a cooler with me, which seems to be not so bad. Good thing I like camping!

      • Dixie Lee says:

        Gluten intolerance is so common now, airlines offer an alternative to their horrid meals. I would not have thought, but I was SUPER thrilled when a stewardess noticed I didn’t eat and asked me if I would like one of their gluten free meals. It just so happened that another passenger who had pre-ordered had not shown up for the flight. WELL! I think they had this stuff prepared at some local earthy type place. It was WONDERFUL, appeared all natural, and my fellow travelers were ogling! Caveat: I admit that you could end up getting a whole overload of garlic this way, but I also know of a lady who flies a lot and lets them know in advance and has even been served nothing but half a watermelon. For that, I would NOT complain too loudly!

  2. beastie says:

    i have 2 days to decide if I go to Greece in May, it is a self cater holiday, so shoi
    uld be able to pack some goodies in hold bag, may have some meals in friends homes.
    i think i will go mainly for sun and warmth which will do my bones good. Dont thing i will be dining out, so no garlic chessy herb bread, drat ot similar word

    • Tracy says:

      Oh a holiday in Greece sounds lovely – I have a few recipes up for food tat travels well – the beef jerky is a great staple for eating on the go!

  3. C says:

    About whiskey, never mind the added caramel, many are matured
    In old wine casks so double trouble.
    I have just found (UK) Kallo thin rice cakes
    covered with choc! I checked with Kallo
    who stated no sulphites, so something else
    in hold luggage for upcoming holiday, no
    room for clothes soon

  4. c says:

    I got a report from a certain liquer firm, not sure how to
    Put on here ig you are interested could u let me have
    a email address to forward to, Beastie

  5. c says:

    Well have nearly packed for holiday,put items in hold case
    so I will not starve, not sure I am looking forward
    Re the food I will not be able to eat, also really not sure about sun block
    Creams I will be able to use. Awaiting reply from a pharmachy chain.
    I was told by a leading stock cube company no sulphites in their product
    wrong! I checked on a supermarket re ingredients, onions, some do not
    have a clue, so remember to double check everything. Pain in
    butt, but worth it.

    • Tracy says:

      There are some natural sun blocks you can use:

      Raspberry Seed Oil. The highest of all natural ingredients, contains an estimated SPF of 30-50.
      Shea Butter. An excellent skin protectant with an SPF of approximately 6-10.
      Carrot Seed Oil. Carrot seed oil is an essential oil and has been estimated to contain SPF levels of 30.
      Wheat Germ Oil. While super nourishing for the skin, it too possesses a natural SPF of 20.
      Sesame oil, Coconut Oil, Hemp oil, Avocado oil, Soybean, and Peanut Oil. All contain SPF levels between 4-10

      Hope this helps!!

      • Dixie Lee says:

        You don’t have aloe on this list. Just wondering what you have found with it. I mushed up some from my own houseplant and got a red rash within minutes of putting it on my arms. So astonished. I thought it was supposed to be THE most soothing plant in every farm kitchen’s window sill.

    • Dixie Lee says:

      I realize this is a very old post, but had to add my two cents: Coconut oil is THE best sun protector you can find. Pure, unpasteurized, organic coconut oil – I cook with it exclusively and also put it in old medicine bottles for my skin when traveling to tropics.

      • Dixie Lee says:

        Tracy, are you saying that coconut is high in sulphite and if so I should avoid it? If that is so maybe that IS my problem, as I have been using it during the last few years! If this is the case, it could account for much and I am wanting to cry. I thought I had a good thing going, and I have been getting so much sicker over last year. Cold sores one after another. It seems I never learn enough. I thought that going all natural would lick my problem and I have not had sugar for over 5 years, let alone anything that says added sulphite, MSG, or “flavor” which pretty much rules out ANY thing prepared. I shop the fresh aisles and dairy, and buy organic chickens and a whole grass fed cow is in my deep freeze.

        • Cheryl DiCostanzo says:

          I’m chiming in as a many years sulfite/fate into ternate person. Coconut itself does not have sulfites. However, entire coconuts are dipped in sulfites for transport, otherwise they would mold. But tests have proved that the sulfur does not leach through to the coconut. I would, however, caution against using coconut oils products, even ones that are organic. Oils will mold, and most need preservatives. (Just like many water filters are made from coconut matting, which must be treated with sulfites.). Not all oils have sulfites but since the dose is small, the FDA does not require the manufacturer to label that fact. If I were you, I would purchase sulfite testing strips. They are kind of pricy, but worth it. I get mine at: http://www.ChemSee.com

  6. C says:

    Found sun cream orangic aloe Vera so
    that has worked, on holiday now in hot
    and sunny Rhodes Greek island,
    I have small table top oven in apartment so
    Been able to cook fresh chicken, beef and lamb
    using fresh herbs,so far so good.
    Water not so good, local water has many minerals
    so straining that thro muslin,bottled in plastic bottles!
    So I am trying to be careful, very limiting
    Though seeing good Greek friends is wonderful
    and products I brought with me still holding out.

  7. Kara says:

    Have you bought any raspberry or carrot seed oil, if so where and what brand?

  8. C says:

    Now I am showing signs is salicylates intolerance! So really
    up againsts it. Current items I am ok with
    so far. Cashew butter, rice cakes,white potatoes,
    chicken,beef and celery.
    Wondering golden flax seeds. Also oats.
    Going away again soon so I will ale some items
    with me.

  9. Cheryl DiCostanzo says:

    Hi there. I’m new to this blog and have not read everything so please forgive me if I am being redundant. I figured out I had a sulfite/sulfate intolerance a few years ago. I kept a food journal for over six months and my husband and I narrowed down the possible culprits little by little.
    Because he is such a brilliant researcher, he has been able to find sulfite free things I can eat and drink, so that life isn’t so bleak.
    I can relate to the traveling issue for sure! A few years ago we traveled to Tulum, Mexico and fortunately, there are many organic restaurants there and most people speak English so I was fine. The biggest challenge was water. Our hotel could not guarantee sulfite free water so we decided to mail water to the hotel (which turned out to be prohibitively expensive). The. my husband, David, had the bright idea to send some sulfite testing strips to a friend in Playa and ask him to test water for us. Unfortunately, the strips never arrived. So we wound up asking our driver who picked us up from the airport to stop at a supermarket. There, we bought several different brands of water and found one (Mexicam brand) to be sulfite free! So we bought a few cases to bring to our hotel. We also used the strips to test other food and beverage items. It was enormously helpful: better than tasting a little and seeing if I get a reaction!!
    I want to mention also that we have tested many many brands of water in the states, and found two to be sulfite free: Iceland Springs and Icelandic Glacier.
    I don’t know if it’s been covered already but, I take vitamin B supplements (B complex) and molybdenum supplements. Both of thee help your body process sulfites, sulfites. It’s almost impossible to avoid sulfites altogether but I find the supplements help me tolerate small doses. I’ve read that people with sulfite intolerance have a molybdenum deficiency. I’m not sure that’s true so please don’t quote me on that.
    Lastly I want to caution everyone against believing food labels in the U.S.
    By LAW, if a food manufacturer decides to change the ingredients in a processed food, they do not have to state the change for SIX MONTHS!!
    That’s right. They can add chemicals like sulfites and they do not have to tell you right away. That’s because the FDA is staffed with many many food manufacturers.
    On that note, I will sign off. Thank you for this blog. I wish it had been around when I first started down the sulfite free path.
    Cheryl

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